I am an adult born with physical disabilities that cause my body to still need pediatric sized medical equipment. I have had all my medical specialists at Childrens Hospital Boston since 1968. In May 08 I went to Childrens Hosp Boston’s ER with adominal pain from what ended up being a knotted up lower intestine blockage. I was in acute distress, projectile vomiting, doubled over in pain, begging this hospital to help me, while Children’s diagnosed and then dumped me against me and my families wishes on another hospital across the street from them with no childsized equipment. The adult hospital and surgeons immediately begged Chidrens to take me back to do my emergency surgery because they had no experience with my disabilities and had none of the right sized equipment or staff trained to impliment pediatric sized medical care but Childrens still refused. Due to this situation I had my nose broken by adult sized tubes, neck spinal damage from the endo tracheal tubes being too big to fit down my throat, PTSD from having to be intubated awake with no sedated. Childrens promised communication, and my medical history with the adult hospital but only provided one chest xray, unanswered paging, voice mails, that delayed my failing body from the surgery I needed for many many hours. Because the adult hospital had no pediatric sized equipment blood test, blood pressure, foley catheters etc basic health care was not possible. I was operated on blind of being able to get the preop blood test every human being needs for safe anaesthestitia, blood typing, clotting, etc. The surgeons had to cut my groin open to get the blood they needed from an artery after life threatening surgery was in progress. By God’s will I survived but now have untreated additional medical problems from the ordeal of being injured in a medical care setting unequiped to handle my complex needs. Adding insult to injury Childrens Hospital Boston has since rewritten my medical history to make me appear on paper to not have been in any pain or medical distress while in their ER May 08 and changed my disability suddenly from the infant onset they’ve treated since 1968 into a fictional ‘adult onset’. This sudden document switch is now causing me delays in medicaid covering my already existing essential daily medical care because on paper I don’t appear in true need of childhood disability and the complex care needs resulting from it. I have contacted Childrens to fix their flawed documentation of my records but they are still passing on the buck almost a year later. If anybody here can help me find advocacy, justice, and ways to get this hospital from abandoning other patients like myself please email me at [protected]@verizon.net I’m not looking for money. I’m willing to go public to raise awareness on this issue. I want the world to be aware of the harm that can happen to people with fragile medical conditions who need pediatric sized medical settings no matter what age they live to be. A person should not have to be harmed or die because their body stayed small while they have lived on beyond the age of 22.
This complaint and/or review was posted on HolySmoke.org on 04:54 am, March 01, 2020 (CST) and is a permanent record located at: https://www.holysmoke.org/scam/boston-childrens-hospital/.
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